Our Blog

As I’ve previously mentioned, our mental health system is severely broken. People are still afraid to talk about it or seek help and we...

As I navigate through this new life I've been thrown into, writing has become very therapeutic for me. As most of you know, I have been...

Often in the last six years or so I would constantly tell myself “you can do hard things”. I would tell Tim this on occasion too when he...

Lately, I’ve been what my therapist calls an “automatic investigator”. This is a normal thing during the grieving process so good to...

It’s been four weeks… four long, heartbreaking, soul crushing weeks. I never know how I’m going to feel when I wake up but most days...

Whenever Charlie Brown said this, it was his way of saying ‘bummer’. If you don't know who Charlie Brown is, we will save that for...

Two weeks ago today, my husband chose death by suicide. He was my biggest supporter, advocate and cheerleader. Now I'm left navigating...

Tim and I had this saying whenever things got tough, HOMETEAM! It was our little reminder to each other that when things got hard or we...

When I made the choice to start writing a column about ITP for Rare Disease Advisor, I was SO excited! If you've been following my...

Typically I just add my recent articles to the previous blog posting I did about writing for Rare Disease Advisor, however, I felt this...

A couple months ago I was approached by a company that provides amazing information about a variety of rare diseases in the world. ...

Some people will never understand... it's that simple.  They'll never know what it's like to have an "invisible illness".  They'll never...

"We can't help everyone but everyone can help someone" Having support from those around you can be tough... especially when you have an...

I have been sharing on my social all month long about Rare Disease Awareness Month. It occurs every February and the 28th is set as the...

February is Rare Disease Month so it's only appropriate that I do a post about it! 😬 ITP is in fact, a rare disease after all! If you...

It's been some time since I posted and I felt an experience from yesterday was worth discussing. I recently participated in a...

Something has been asked about me, more recently this year than ever before… how do you live a regular life after ITP? How have you...

Talk about a nice surprise! Sooo it’s been a few months since I’ve done a post so let me recap SUPER quick! My platelets have been...

I’d say it’s about time for a check in! I just did my blood work and for the 7th month in a row my platelets have been STABLE! 🎉 I...

I contemplated how to post or what to post. Contemplated what to say and what not to say. Something so amazing, yet I don’t even know...